Dear fellow patients, caregivers, and friends…
I’m writing to ask for your help. Despite our best efforts to convince the Joint Oncology Drug Review that second-line treatment is urgently needed for patients in Canada, we now know that JODR has recommended that the provinces NOT fund Afinitor. This will mean that, as of January 20 2011, patients needing treatment after their first drug will have NO publicly-funded treatment options.
JODR has made that recommendation to all provinces (except Quebec which follows a different process.) It is just a matter of time until every province now turns down Afinitor. Nova Scotia has gone first and made their denial public. Ontario’s final decision is due in less than 6 weeks.
Please join us by writing a letter that implores your province to show some compassion for patients with this disease. We need to get as many letters sent in as possible, from every province in Canada. Please see a sample letter here:
If you have any questions, please post a comment here and we will give you any information you need.
We have names of Health Ministers and Drug Reimbursement Managers in every province and will help you direct your letter to the right person in your province.
This situation is absolutely unacceptable in my view, but it will be even harder to fight if provincial governments think that patients don’t really need second-line treatment… they need to know that as citizens and taxpayers we deserve treatment and compassion. Perhaps they think that you can afford
the $6,000 a month or so to pay for your cancer treatment. Perhaps they think that your life somehow is worth less just because you have “the wrong kind of cancer”. If you had a more common cancer, there would be no issue with you receiving one drug after another.
Personally, I am infuriated that we were invited to submit a “Patient Evidence Submission” and that submission has essentially been ignored. An expert mrcc oncologist made a compelling plea for second-line treatment and that plea was also ignored.
Without second-line treatment, patients with metastatic renal cell carcinoma will die. Plain and simple. And utterly unacceptable.
Please join us by submitting your own letter. Make your voice heard, and then ask everyone you know to do the same.
Thank you in advance.
Deb Maskens (as a fellow stage iv mrcc patient, and as Chair of KCC)